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Thread: Misophonia

  1. #31
    @hibs.net private member EH6 Hibby's Avatar
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    Quote Originally Posted by Hibrandenburg View Post
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    It used to be called being "an intolerant moaning faced twat" apparently they call it "Misophonia" now.
    See if you know nothing about a subject, it's usually an idea to say nothing about it.

    Your post is unbelievably disrespectful, and as someone who has suffered with misophonia for about 15 years, I was really happy to see that someone had started a thread about it. I think you would be best to leave the discussion to people who actually suffer or understand it, and people who might be interested in learning more about it rather than dismissing something you clearly know nothing about.

    Oh and I understood exactly what LB was saying.

    Anyway....


    As I said, I have suffered with this since my teenage years, but it got much worse in my early 20's and has got gradually worse since. It affects every part of my life just about. It's not just eating noises for me, I live next to a Basketball Court and the sound of the basketball bouncing all day every day is awful, I have to have music or the tv on to mask it.

    At work the sound of people typing too loud or jewellery ratttling off desks as well as people eating all day at their desks which includes my biggest trigger, people who bash their cutlery off their plates, I can honestly say the cutlery noise can almost send me into a panic attack on a bad day. I spend 90% of my time in work with earphones in to block out the noises which then leads to me feeling isolated from my colleagues. I've also lost friendships in work due to it with people that don't understand.

    Walking outside, I often have to speed up or stop to let someone pass me if they are wearing high heels or don't lift their feet when they walk.

    Eating out is almost impossible for me, it has to be somewhere noisy that masks the cutlery sounds.

    I could probably list at least a hundred sounds that are triggers for me, some are obviously worse than others.

    At it's worst, it can make me feeling like I want to rip my skull open and claw my brain out, either that or it makes me want to physically hurt someone, thankfully I've never acted on that feeling.

    I did read a few months ago that there may be an actual physical reason that people suffer from Misophonia. http://www.bbc.co.uk/news/health-38842561


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  3. #32
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    Quote Originally Posted by pacoluna View Post
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    Is this not a form of OCD then? There's is no define level of tolerance to noises that equate to being misophonic so in that sense we all suffer from misophonia. Everyone hates some sort of noise as I've mentioned before.
    Here's an article written by someone who has done a bit of research into the subject

    http://nypost.com/2016/11/16/every-day-noises-drove-this-historian-to-suicide/amp/

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    Quote Originally Posted by pacoluna View Post
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    Is this not a form of OCD then? There's is no define level of tolerance to noises that equate to being misophonic so in that sense we all suffer from misophonia. Everyone hates some sort of noise as I've mentioned before.
    I think there are links to OCD, I definitely have some OCD tendencies, there is also links to suffers possibly being on the Autistic spectrum.

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    Quote Originally Posted by pacoluna View Post
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    Everyone hates the noise of people chewing, snoring, slurping, loud bairns etc no?
    Quote Originally Posted by Hibrandenburg View Post
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    Exactly. There's some sounds, sights and smells that cause a negative reaction in everyone.
    Neither of you are quite getting this.

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    Quote Originally Posted by Victor Park View Post
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    Neither of you are quite getting this.
    I do, I have now doubt it is a debilitating illness for those who have it. But people self diagnosing them selves with misophonia because they have an intolerance to certain noises is just as dangerous as those who mock it IMO. As I said before it sounds like as if it could come under the OCD spectrum which everyone knows is debilitating . I have OCD myself and when I am anxious it manifests into a range of horrible different symptoms similar to but not the same as misophonia.
    Last edited by pacoluna; 16-05-2017 at 06:43 PM.

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    Quote Originally Posted by pacoluna View Post
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    I do, I have now doubt it is a debilitating illness for those who have it. But people self diagnosing them selves with misophonia because they have an intolerance to certain noises is just as dangerous as those who mock it IMO. As I said before it sounds like as if it could come under the OCD spectrum which everyone knows is debilitating.
    Well ive never been diagnosed by a doctor, but I'll tell you right now ive got it, although ive no doubt its mild in comparison to others.

    But it has caused problems with Family members in particular. There are clearly varying degrees of seriousness with it, but its very different from just not liking a sound.

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    Quote Originally Posted by Victor Park View Post
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    Well ive never been diagnosed by a doctor, but I'll tell you right now ive got it, although ive no doubt its mild in comparison to others.

    But it has caused problems with Family members in particular. There are clearly varying degrees of seriousness with it, but its very different from just not liking a sound.
    Which makes me think it could be a form of OCD. Irrational thinking, responses to small things.

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    Quote Originally Posted by EH6 Hibby View Post
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    I think there are links to OCD, I definitely have some OCD tendencies, there is also links to suffers possibly being on the Autistic spectrum.
    My son is autistic and certain noises just set him off, it used to be buses when they stopped at bus stops and the air pressure was let out to lower the bus, hard to describe the noise but if you get a bus you will know what I mean.

    Luckily he seemed to grow out of that, but now it's crying babies, for some reason he just bursts out crying himself when he hears a baby crying. So we are always on the look out for people with babies and do our best to avoid.

    Certainly nothing to make light of.

  10. #39
    Quote Originally Posted by Victor Park View Post
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    Well ive never been diagnosed by a doctor, but I'll tell you right now ive got it, although ive no doubt its mild in comparison to others.

    But it has caused problems with Family members in particular. There are clearly varying degrees of seriousness with it, but its very different from just not liking a sound.
    You've never been diagnosed by a doctor? Is this something a doctor would recognise?

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    Quote Originally Posted by EH6 Hibby View Post
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    See if you know nothing about a subject, it's usually an idea to say nothing about it.

    Your post is unbelievably disrespectful, and as someone who has suffered with misophonia for about 15 years, I was really happy to see that someone had started a thread about it. I think you would be best to leave the discussion to people who actually suffer or understand it, and people who might be interested in learning more about it rather than dismissing something you clearly know nothing about.

    Oh and I understood exactly what LB was saying.

    Anyway....


    As I said, I have suffered with this since my teenage years, but it got much worse in my early 20's and has got gradually worse since. It affects every part of my life just about. It's not just eating noises for me, I live next to a Basketball Court and the sound of the basketball bouncing all day every day is awful, I have to have music or the tv on to mask it.

    At work the sound of people typing too loud or jewellery ratttling off desks as well as people eating all day at their desks which includes my biggest trigger, people who bash their cutlery off their plates, I can honestly say the cutlery noise can almost send me into a panic attack on a bad day. I spend 90% of my time in work with earphones in to block out the noises which then leads to me feeling isolated from my colleagues. I've also lost friendships in work due to it with people that don't understand.

    Walking outside, I often have to speed up or stop to let someone pass me if they are wearing high heels or don't lift their feet when they walk.

    Eating out is almost impossible for me, it has to be somewhere noisy that masks the cutlery sounds.

    I could probably list at least a hundred sounds that are triggers for me, some are obviously worse than others.

    At it's worst, it can make me feeling like I want to rip my skull open and claw my brain out, either that or it makes me want to physically hurt someone, thankfully I've never acted on that feeling.

    I did read a few months ago that there may be an actual physical reason that people suffer from Misophonia. http://www.bbc.co.uk/news/health-38842561

    Whilst I sympathise with the affliction you obviously have and apologise if anything I said may have caused you distress, I still stand by my opinion that it's not noise that causes your distress rather the noise is a trigger for underlying issues, much in the same way spiders or snakes are for those who have phobias or relatively harmless situations that set off panic attacks in some people.

    My first post on this thread was my attempt at light humour with somebody who commented on his wife's annoyance at the noises he made when eating and how that made him feel and before I knew it I was being compared to those who mocked people with depression. That's not on and could have been nipped in the bud if the guy had just said his intention was not to associate me to those who dismiss depression, he didn't and just kept twisting the knife. The internet eh!

    For what it's worth I have a medical background and a reasonable knowledge of psychological disorders and fully believe that the symptoms now being called Misophonia on this threaf are just that, symptoms of other underlying issues.

    Again no disrespect or hurt intended, just a different opinion as to roots and causes of "select sound sensitivity syndrome".

  12. #41
    Private Members Prediction League Winner Hibrandenburg's Avatar
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    Quote Originally Posted by pacoluna View Post
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    I do, I have now doubt it is a debilitating illness for those who have it. But people self diagnosing them selves with misophonia because they have an intolerance to certain noises is just as dangerous as those who mock it IMO. As I said before it sounds like as if it could come under the OCD spectrum which everyone knows is debilitating . I have OCD myself and when I am anxious it manifests into a range of horrible different symptoms similar to but not the same as misophonia.
    Indeed, making self diagnosis based on something you've read on the internet is a dangerous path to follow. My niece suffered from OCD that meant she was constantly mulling over what she should or shouldn't eat. To the immediate family it was blatantly obvious that she was suffering from anorexia, anorexia is another dangerous psychological disorders that tends to be accepted as a disease in its own right when in reality it's masking a multitude of underlying issues that never get addressed because it's the symptoms that get treated and not the source. Sadly this was the case with my niece and unfortunately for her the real issues were never attended to.

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    Quote Originally Posted by pacoluna View Post
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    I do, I have now doubt it is a debilitating illness for those who have it. But people self diagnosing them selves with misophonia because they have an intolerance to certain noises is just as dangerous as those who mock it IMO. As I said before it sounds like as if it could come under the OCD spectrum which everyone knows is debilitating . I have OCD myself and when I am anxious it manifests into a range of horrible different symptoms similar to but not the same as misophonia.
    Quote Originally Posted by Victor Park View Post
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    Well ive never been diagnosed by a doctor, but I'll tell you right now ive got it, although ive no doubt its mild in comparison to others.

    But it has caused problems with Family members in particular. There are clearly varying degrees of seriousness with it, but its very different from just not liking a sound.
    Quote Originally Posted by pacoluna View Post
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    Which makes me think it could be a form of OCD. Irrational thinking, responses to small things.
    Here are the symptoms of Misophonia, from Misophonia UK Website: http://www.misophonia-uk.org/faqs.html

    They are nothing like any description of the symptoms of OCD I've ever seen. I would suggest people self diagnosing based on the symptoms they do have is far less less dangerous than you telling people they might have OCD despite not having any of the symptoms of OCD. That just isn't logical.

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    Quote Originally Posted by ColinNish View Post
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    You've never been diagnosed by a doctor? Is this something a doctor would recognise?
    Well an audiological physician or an ear nose and throat doctor, yes.

    Not sure what you are getting at?

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    Quote Originally Posted by Hibrandenburg View Post
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    Whilst I sympathise with the affliction you obviously have and apologise if anything I said may have caused you distress, I still stand by my opinion that it's not noise that causes your distress rather the noise is a trigger for underlying issues, much in the same way spiders or snakes are for those who have phobias or relatively harmless situations that set off panic attacks in some people.

    My first post on this thread was my attempt at light humour with somebody who commented on his wife's annoyance at the noises he made when eating and how that made him feel and before I knew it I was being compared to those who mocked people with depression. That's not on and could have been nipped in the bud if the guy had just said his intention was not to associate me to those who dismiss depression, he didn't and just kept twisting the knife. The internet eh!

    For what it's worth I have a medical background and a reasonable knowledge of psychological disorders and fully believe that the symptoms now being called Misophonia on this threaf are just that, symptoms of other underlying issues.

    Again no disrespect or hurt intended, just a different opinion as to roots and causes of "select sound sensitivity syndrome".

    Depression will be caused by underlying issues, whether that be a chemical imbalance in the brain, or maybe the death of a loved one.

    It's still called depression though and the symptoms still exist and may be identical regardless of the underlying issues.

    Are you suggesting that Misophonia isnt a thing? Its quite clearly a specific set of symptoms, regardless of the underlying issues.

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    Quote Originally Posted by Victor Park View Post
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    Here are the symptoms of Misophonia, from Misophonia UK Website: http://www.misophonia-uk.org/faqs.html

    They are nothing like any description of the symptoms of OCD I've ever seen. I would suggest people self diagnosing based on the symptoms they do have is far less less dangerous than you telling people they might have OCD despite not having any of the symptoms of OCD. That just isn't logical.
    Just had a look at that link and to be honest I think it's extremely dodgy at the very least. They admit themselves that most doctors won't recognise the disorder as such and go on to offer support in a group. It's always questionable when an Internet presence advises to seek support in their group and ignore the medical professionals expert knowledge or lack of knowledge. Tread carefully.

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    Quote Originally Posted by Victor Park View Post
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    Depression will be caused by underlying issues, whether that be a chemical imbalance in the brain, or maybe the death of a loved one.

    It's still called depression though and the symptoms still exist and may be identical regardless of the underlying issues.

    Are you suggesting that Misophonia isnt a thing? Its quite clearly a specific set of symptoms, regardless of the underlying issues.
    Agreed, depression has a whole spectrum of causes, however there is also a whole spectrum of treatments. Just out of interest and let's take it as read that there is disorder in its own right called Misophonia, which medical practitioner would you consider to be the correct point of contact, a ear, nose and throat Dr, a psychologist or a neurologist?

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    @hibs.net private member lord bunberry's Avatar
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    Quote Originally Posted by Hibrandenburg View Post
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    Whilst I sympathise with the affliction you obviously have and apologise if anything I said may have caused you distress, I still stand by my opinion that it's not noise that causes your distress rather the noise is a trigger for underlying issues, much in the same way spiders or snakes are for those who have phobias or relatively harmless situations that set off panic attacks in some people.

    My first post on this thread was my attempt at light humour with somebody who commented on his wife's annoyance at the noises he made when eating and how that made him feel and before I knew it I was being compared to those who mocked people with depression. That's not on and could have been nipped in the bud if the guy had just said his intention was not to associate me to those who dismiss depression, he didn't and just kept twisting the knife. The internet eh!

    For what it's worth I have a medical background and a reasonable knowledge of psychological disorders and fully believe that the symptoms now being called Misophonia on this threaf are just that, symptoms of other underlying issues.

    Again no disrespect or hurt intended, just a different opinion as to roots and causes of "select sound sensitivity syndrome".
    I really don't know what your problem is. I didn't associate you with anyone. I made a simple point that years ago people used to make light of depression in the way you were about misophonia. I didn't mean it any anyway shape or form that you were one of those people. It was more a point in general. As for twisting the knife it was you that continued to escalate the situation. I tried to leave the matter, but you kept the argument going.
    This illness is still relatively new to doctors in terms of research and diagnosis and in time will almost certainly become classified as a form of mental illness. All I was trying to do was highlight that it was a serious condition that shouldn't be made light off. There was no need for this to escalate the way it did.

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    Quote Originally Posted by pacoluna View Post
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    There is no criteria for diagnosing misophonia. The symptoms to me if i was to try and categorise it would be obsessive and compulsive related
    They arent obsessive and compulsive though they are reactionary to a noise. If the noise doesn't happen there are no symptoms.

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    Quote Originally Posted by lord bunberry View Post
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    I really don't know what your problem is. I didn't associate you with anyone. I made a simple point that years ago people used to make light of depression in the way you were about misophonia. I didn't mean it any anyway shape or form that you were one of those people. It was more a point in general. As for twisting the knife it was you that continued to escalate the situation. I tried to leave the matter, but you kept the argument going.
    This illness is still relatively new to doctors in terms of research and diagnosis and in time will almost certainly become classified as a form of mental illness. All I was trying to do was highlight that it was a serious condition that shouldn't be made light off. There was no need for this to escalate the way it did.
    OK fair doos.

    "I didn't mean it any anyway shape or form that you were one of those people".

    That's all I was looking for, I might have rightly or wrongly assumed that you were and apologise that I took what you said in the wrong way and thank you for your clarification.

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    Quote Originally Posted by Hibrandenburg View Post
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    Just had a look at that link and to be honest I think it's extremely dodgy at the very least. They admit themselves that most doctors won't recognise the disorder as such and go on to offer support in a group. It's always questionable when an Internet presence advises to seek support in their group and ignore the medical professionals expert knowledge or lack of knowledge. Tread carefully.
    The nhs recognises it but calls it by a different name, Hyperacusis.

    I think its likely there is a lack of understanding with medical professionals as it is only relatively recently emerging as a fairly common thing amongst people. I never once told anyone about my symptoms when i was young because i thought i was just a bit weird tbh, but the internet means sharing experiences is much easier and it is a lot easier to find like minded people throughout the world!

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    Quote Originally Posted by Hibrandenburg View Post
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    Agreed, depression has a whole spectrum of causes, however there is also a whole spectrum of treatments. Just out of interest and let's take it as read that there is disorder in its own right called Misophonia, which medical practitioner would you consider to be the correct point of contact, a ear, nose and throat Dr, a psychologist or a neurologist?
    A very good question and i think the lack of understanding and short timeframe that the problem has been in the eye makes it hard to answer.

    What ive read It would suggest Audiological physician or ent doc. But your other suggestions seem like good shouts also! I think eventually it will be figured out.

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    Private Members Prediction League Winner Hibrandenburg's Avatar
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    Quote Originally Posted by Victor Park View Post
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    The nhs recognises it but calls it by a different name, Hyperacusis.

    I think its likely there is a lack of understanding with medical professionals as it is only relatively recently emerging as a fairly common thing amongst people. I never once told anyone about my symptoms when i was young because i thought i was just a bit weird tbh, but the internet means sharing experiences is much easier and it is a lot easier to find like minded people throughout the world!
    Sometimes the best thing is just being able to share something and know your not alone mate. Thinking your alone makes you doubt your own sanity. However I also believe that we need some form of explanation to things we don't understand and often put 1 and 1 together and make three because of our desire to have closure. I'm not saying the symptoms aren't real, simply suggesting that the symptoms are just that, symptoms. The cause is more than likely something else how ever.

    I'm always wary when it comes to making diagnosis. I've personally had 2 experiences in my life that left their mark on me.

    1. As a young man I boxed for my regiment in the army. On the day before a final fight I failed my medical due to having blood in my urine. I wasn't allowed to box and sent to have tests as to where the blood was coming from. Unlucky for me I was sent to a specialist who was convinced he'd found a new kind of kidney disorder and thought I was the 2nd example that he'd found and was determined to prove his theory. He'd even named the disorder after himself. For weeks I was prodded and poked, biopsy after biopsy until he had to admit that I wasn't slowly pissing my kidneys out and it was just normal that some young men passed urine whilst under physical exertion. Was a horrible time and I'd been convinced that my future was dialysis and kidney transplant.


    2. After attending a traffic accident we found a car that hard obviously hit a tree at high speed and there was an unconscious woman with extensive head injuries trapped behind the wheel. After we'd cut her out we stabilised her for transport by intubating her and connecting her to a ventilator. We delivered her to the nearest Accident and Emergency unit and made the diagnosis that she was unconscious due to her head injuries received in the accident. The hospital then ordered CT and x rays to confirm the diagnosis and assess the damage. She died whilst on the x-ray table. Later it was discovered that she actually had hypoglycaemia and that was the cause of the a accident in the first place and had we tested for that then maybe we could have saved her. Not something I'm proud about and it will always haunt me as long as I live.


    I guess what I'm trying to say is that it's dangerous to make a diagnosis and that all alternatives need to be considered if you're going to make the right decision on health matters.
    Last edited by Hibrandenburg; 17-05-2017 at 07:34 AM.

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    @hibs.net private member lord bunberry's Avatar
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    Quote Originally Posted by Hibrandenburg View Post
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    OK fair doos.

    "I didn't mean it any anyway shape or form that you were one of those people".

    That's all I was looking for, I might have rightly or wrongly assumed that you were and apologise that I took what you said in the wrong way and thank you for your clarification.
    No problem mate.

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    Quote Originally Posted by Hibrandenburg View Post
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    Agreed, depression has a whole spectrum of causes, however there is also a whole spectrum of treatments. Just out of interest and let's take it as read that there is disorder in its own right called Misophonia, which medical practitioner would you consider to be the correct point of contact, a ear, nose and throat Dr, a psychologist or a neurologist?
    I went to my doctor in the first instance, I was then referred to ENT to make sure there was no physical reason for my issues. There wasn't. I was then referred to see a psychologist, and waited over a year for an appointment. When I finally did get one, I wasn't able to make it due to my son having an urgent appointment the same time. I've still not had another appointment through yet.

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    Back in the 90's, my mum started suffering from Chronic Fatigue Syndrome (or M.E.). She was widely denounced by doctors and medical practitioners, because back then, it wasn't recognised as any proper type of disease. She was labelled all sorts by her employers, doctors and even family.

    Fast forward to now, and whilst it's still poorly understood from a pathophysiological point of view, it's increasingly recognised at least by the medical community as being a thing.

    I reckon in years to come, as we undertake more focused research, misophonia will become better understood and less dismissed. For me, I don't believe it to be an illness in its own right - even though I do suffer from it, I tend to suffer from it most markedly when my generalised anxiety is at its worst - I tend to view it as a symptom of something underlying rather than a standalone disease. But then I'm not that kind of doctor!
    Okay, technically I'm a serial killer...

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